NADA ZA MOJ BOLJI ŽIVOT-TIHO SE GASIM,A JOS SE NEDAM

OVO JE MOJA PRICA!

Zamislite da jednog dana ustanete i vaše noge više vas ne slušaju,pokušavatezakoračiti,tijelo se više nemiče kako vi želite.Zamislite da tako gledate osobu koju volite kako se iz dana u dan sve teže kreće,pa sve teže ustaje,pa sve više šuti.

Jer zna što dolazi.Ovo nije priča iz dalekih krajeva,ni iz filmova,ovo je moja priča iz ulice,iz susjedstva.Ovo je prica o ženi koja je donedavno išla pješice na posao,pjevala,smijala se,živjela život punim plućima.To je moja priča.To je borba koja se vodi već 6 godina,tiha,uporna,bez oružja,bez lijekova.

Samo nada i ljubav.Do 2019. ja sam bila zdrava i vesela.Imala sam obitelj,posao,planove,obične male snove koji svima znače sve.Aonda su stigli prvi znakovi -sitni,ali zloslutni umor,nespretnost u hodu,slabost u nogama.Krenule su bolnice,pretrage,biopsije,igle,strah...I onda dijagnoza.LGMD-pojasna mišicna distrofija.Neizlječiva,podmukla,progresivna.Godinama mi tijelo postaje zatvor.

Od 2020.-2022.još sam hodala uz pomoć štapa,danas sam u invalidskim kolicima.Moje tijelo polako odustaje,ali moj duh ne odustaje.Od 2023.godine u potpunosti ovisim o svom suprugu,on kuha,pere,njeguje me, pomaže u najintimnijim trenutcima ljudskog dostojanstva-od kupanja do toaleta.

A JAA??? Ja se i dalje borim ,tiho,bez pompe,ali s nadom koja  se inati bolesti.LIJEK ZA MOJU BOLEST-NE POSTOJI

Ali postoji nada.Poiklinika GLAVIĆ u Zagrebu nudi specijalnu rehabilitaciju koja može usporiti napredovanje bolesti,osnažiti tijelo,i vratiti komadić samostalnosti.Ali ta nada košta 75 000 eura cijrlu godinu.U poliklinici Glavić se obavio pregled kod dr.med.spec.fizikalne medicine i rehabilitacije PETRE MIKLIĆ MALENICA gdje je utvrđeno da bi najmanje trebala godina rehabilitacije.

Znam da je to ogromna novčana svota novca ,kojunrijetki od nas imaju(više nas ima koji tu svotu novca nemamo),jer mnogi  su u kreditima i minusima.A meni nedostižna svota novca.Zato se obraćam vama dragi ljudi,Vama koji imate srce,koji znate bespomoćno gledati voljenu osobu kako nestaje pred očima.

Za neke je to iznos nekog skupog putovanja ili novi auto.A ZA MENE JE TO ŽIVOT.To je jos jedna godina kojoj možda neću pasti dok pokušavam dokučiti čašu vode.Još jedan dan u kojem neću reći :"NE MOGU VIŠE OVAKO!!"Još jedna šetnja makar do prozora.Izato dijelim svoju priču sa cijelom Hrvatskom,jer negdje možda postoji netko tko zna kako je to-netko tko je prošao isti,netko tko se bori kao ja.

Netko tko mi može pomoći savijetom,riječju,nadom.I da možda ima netko tko ce pomoci da se skupi 75 000 eura za spas mog tijela od potpunog gašenja.Moja obitelj i ja nemamo koga više moliti za pomoć.Zato Vas gledam u oči ,Vas koji ovo čitate i govorim:-POMOZITE MI DA SPASIM SVOJE DANE!

Nemogu  usporit bolest ,ali mogu usporiti njezin hod.Izato vas molim iskreno iz srca,ako ste ikada izgubili nekoga,ako ste gledali kako netko nestaje pred vašim očima-znat će te poznate kako boli ta nemoć.Zato vas molim budite moja snagaga sada,budite moja šansa za bolji život. JER JA SE JOŠ NE PREDAJEM.

Molim Vas-pomozite mi!!

Pomozite mi da zadržim dostojanstvi,da usporim ovu opaku bolest, da barem jošneko vijeme budem tu .kao žena,kao kćer,kao sestra,kao teta,kao šogorica,kao BORAC!!!

JER SVAKA MINUTA MOG KRETANJA JE MOJA POBIJEDA!

SVAKA DONACIJA-KORAK PROTIV BOLESTI(uplata od 1 eura je moja nada za bolji život)

SVAKA OBJAVA-SVIJETLO U TAMI

Netražim čudo ,samo tražim šansu.

Hvala Vam što ste pročitali.Hvala ako se odlučite pomoći-ZA NADU, ZA ŽIVOT KOJI NIJE GOTOV

HOPE FOR A BETTER LIFE – I'M SLOWLY FADING AWAY, BUT I'M STILL FIGHTING

THIS IS MY STORY!

Imagine waking up one day, and your legs no longer obey you. You try to step forward, but your body no longer moves as you want. Imagine watching the person you love struggling to move each day, finding it increasingly difficult to stand, becoming quieter and quieter.

Because they know what's coming.

This is not a story from distant lands or from a movie. This is my story, from your street, your neighborhood.This is the story of a woman who, until recently, walked to work, sang, laughed, and lived life to the fullest.This is my story.It's a silent, persistent battle I've been fighting for six years, without weapons, without medication.

Only hope and love.

Until 2019, I was healthy and happy. I had family, work, plans—simple little dreams that mean everything to everyone.Then the first signs appeared—small but ominous fatigue, clumsiness in walking, weakness in my legs.Then came hospitals, tests, biopsies, needles, fear...And then the diagnosis.

LGMD—Limb-Girdle Muscular Dystrophy. Incurable, insidious, progressive.

Year after year, my body has become a prison.

From 2020 to 2022, I could still walk with the help of a cane. Today, I am in a wheelchair. My body is slowly giving up, but my spirit does not surrender.Since 2023, I have been completely dependent on my husband. He cooks, cleans, takes care of me, and helps me in the most intimate moments of human dignity—from bathing to going to the toilet.AND ME? I continue to fight, silently, without fuss, but with hope stubbornly challenging my disease.

THERE IS NO CURE FOR MY DISEASE.But there is hope.

The GLAVIĆ Polyclinic in Zagreb offers specialized rehabilitation that can slow down the progression of the disease, strengthen my body, and give back a piece of my independence.

But this hope costs 75,000 euros for an entire year.

At the Glavić Polyclinic, I underwent an examination by Dr. Petra Miklić Malenica, a specialist in physical medicine and rehabilitation, who determined I would need at least one year of rehabilitation.

I know that is an enormous sum of money, which very few of us have (more of us don’t have it), because many are already in debt or overdrafts.

It is an unreachable sum for me.That's why I turn to you, dear people—to you who have hearts, to you who know the helplessness of watching a loved one fade away before your eyes.

For some, it's the price of an expensive trip or a new car. FOR ME, IT IS LIFE.It is another year in which I might not drop a glass of water while reaching for it.Another day when I won't say, "I CAN'T TAKE IT ANYMORE!"Another walk, even if only to the window.

That's why I share my story with all of Croatia, because somewhere there might be someone who knows what this is like—someone who has experienced the same, someone who fights as I do.

Someone who can help with advice, words, or hope.

And maybe there is someone who can help gather the 75,000 euros needed to save my body from completely shutting down.

My family and I have no one left to ask for help.That's why I look into your eyes, you who are reading this, and I say: HELP ME SAVE MY DAYS!I cannot stop the disease, but I can slow its pace.

So, I sincerely ask you from the bottom of my heart—if you have ever lost someone, if you have ever watched someone fade away before your eyes, you know that feeling of helplessness.

That's why I beg you to be my strength now, be my chance for a better life. BECAUSE I'M NOT GIVING UP YET.

Please—help me!

Help me maintain my dignity, slow down this cruel disease, and stay a little longer as a woman, a daughter, a sister, an aunt, a sister-in-law—as a FIGHTER!!!

BECAUSE EVERY MINUTE OF MY MOVEMENT IS MY VICTORY!

EVERY DONATION—A STEP AGAINST THE DISEASE (even a donation of 1 euro is my hope for a better life).

EVERY SHARE—A LIGHT IN THE DARKNESS.

I'm not looking for a miracle; I’m only asking for a chance.

Thank you for reading. Thank you if you decide to help—FOR HOPE, FOR A LIFE THAT IS NOT YET OVER.