Терапията продължава Therapy continues

Dear people,

Today I am writing from the hospital while I am having another infusion.

I will start by saying that I feel fine, and the nurses and administration here are wonderful and once again make me smile. Every time they are interested in how I am and ask about the baby. I probably wouldn't be lying if I said there isn't a nurse who doesn't know me and wave and/or send an air kiss when she sees me, even if she isn't serving me that particular day. The same goes for the administration in the chemo ward. Today, these wonderful people and I were showing pictures of each other - some to our children and others to our tribesmen. This will rarely if ever happen in this country. Despite the reason for my visit here, I come willingly and without discomfort.

Regarding my treatment - this is the fourth infusion since birth (chemo + immuno). We had planned to do five scans after it, so before the fifth, but we're going to delay it by one infusion and do it at the end of August. Besides the five scanner we will also do an MRI, which I can do in Bulgaria if it is cheaper there. It is very likely that after five scanners I will be offered to do a direct infusion to the liver.

For the moment, I have some initial information about the prices of the procedures that will eventually come (I will describe them next time). The amounts are not small, especially the transplant, which I believe will happen at some point. No, the funds available will not be enough, but for now I am comfortable.

Maybe I will try to transfer the chemo and immunotherapies to Bulgaria. I say maybe, because the truth is that I am scared to do it. Afraid because I have less than a year to live with this liver and I can't afford to experiment. I don't know if I will find a doctor who will take the risk and follow someone else's scheme. I don't know if treatment can be changed midway as it is here. I don't even know if appointments with the oncologist are at every visit as it is here, or if a follow-up is done after the scheduled infusions.

For now, the important thing is that I feel fine, that my labs are good (so far), and that I have no serious side effects from the therapy.

If you saw me on the street, you'd never know I was sick and on similar treatment. Even my hair hasn't fallen out yet. I always thought I had weak immunity because I get sick as soon as someone sneezes past me. But my body refuted me! I don't know how it does it, but it copes stoically. It doesn't allow (for the moment) any disseminations to "settle" in other organs. Let's hope he has the strength, this 40-pound body, to keep fighting!

Thank you ornovo for the great support I receive from you ❤️