Hello, Angels of Moni!

I will tell you about my beautiful and struggling girl. My daughter was born with Pierre Robin syndrome and kyphoscoliosis! It's two types of spinal curvature rolled into one. She underwent several casts and plastic corsets to lower her degrees,but to no avail. That's how we got to Turkey!

There they performed Moni's first surgery,because the curvature was already compressing her heart and lungs and was a life threatening 140 degrees. They put implants which are surgically stretched every six months. They removed a vertebra from her spine. They put so-called hooks near her neck because the part of her spine that connects her neck and spine is very loose. Moni had a very difficult 13 hour operation. Then they put a halo vest on her ( you will see it in the pictures) This was the hardest thing we went through in her whole treatment for the kyphoscoliosis.

To see her baby girl in holes in her skull and some device,not allowing her to move her upper body was just breathtaking.

She spent three whole months in bed with it. Then they transferred her to a plastic corset and neck collar,which she wears to this day. We have already stretched the implants one time. But there are still many surgeries to come,many manipulations,which of course are not without consequences for her physical and mental state. Moni developed muscle weakness in her legs from the long immobilization and now we are doing intensive rehabilitation,which is of course also not free. In January we will have surgery again to stretch the implants,so that Moni can grow.

The amount is unfortunately unaffordable for me and my family! We ask you Angels of Moni,to help us in the battle for our child! Please help us to see our girl again,how she runs,plays....to live! Thank you for your support!