Help! How does a 16 year old boy accept becoming a prisoner of his body?

Hello, good people!

Alexander was born a healthy baby, everything was normal until he walked. He was falling down a lot, standing up in a weird way, his pediatrician said that by age 3 kids don't walk properly and , that he was fine. She told us to go to an orthopedist to make sure everything was ok.

After the exam, the doc said to see a neurologist urgently. So we did, they did some tests and a dna test, it turned out to be Duchenne Muscular Dystrophy, one of the scariest diagnoses. It was an absolute shock. It turned out there was no cure, by his 13th year the boys was in a wheelchair and didn't live to be 30, all of which was accompanied by respiratory and heart problems.

For me as a mother, there is hardly a greater misfortune than that. The pain is indescribable.Every single day for the last 16 years has been a struggle, going to hospitals, tests, physiotherapy, whatever it takes to keep him on his feet, albeit walking very slowly.

A few years ago a therapy came out that slows the progression of the disease, we were lucky enough to get it but to date things are not good. Stop the meds in 2 months, and Alex will stop walking.

How does a mother put up with such a thing? How does a 16 year old boy accept becoming a prisoner of his body?

It's hard. Very hard. He's always wanted to just go out with friends, by himself without his mother holding his hand, and he can't because he often falls and has a hard time getting up off the ground. How do I answer his question, why exactly did it happen to me?....

We learned that they do stem cell infusions in Turkey. We sent medical documents and the professor opined that it could forget the progression of the disease and give him a more comfortable life , if infusions were done. Unfortunately, the amount of 30,000 euros is not within our family's means, and there is no way we can raise it in such a short time.

We are therefore asking for help from anyone who could help a boy to continue going to school and to be among his friends.