Hello everyone!

Freya,a much wanted and expected child born normally and without complications,but oooo with the wrong team of doctors.When she was taken out the midwife pinched the central blood vessel feeding the left hemisphere of the brain....

And there somewhere an unbelievable nightmare for a beautiful child begins.Only and only not to find out what happened the whole team tries to cover this mistake and does not take any action to fix in time the already irreversible namely to dilate the blood vessels and everything to be normal...Unfortunately we found out exactly what had happened when Freya was 5 months old and all was already lost and irreparable.After we sought an account of what had happened,the team were fully aware of the consequences and that the outcome of this mistake would scar the child for life!

Of course we immediately started looking for specialists.Lots of opinions,lots of professors and docents,lots of promises etc without any cover !!!

After the first year of going for daily treatments in several places,there were results but minimal.You go around,you ask around,you meet many people with similar,where more severe,where more complicated fate,and somewhere there you understand that the way is one,struggle,struggle and again struggle to achieve what many take for granted,namely your child to walk,to play normally,to talk,to eat and a bunch of other things that we humans do not appreciate until we are faced with something like this,like raising a child with cerebral palsy.

At 1yr and 6 months most doctors had written her off,that any improvement with her condition would happen at all.On the recommendation of a neurologist we took her to a paediatric neurosurgeon,who looked at the MRI and all he said was that in 30 years in paediatric neurosurgery he had never seen anything like it,that with the amount of damage in her left hemisphere of her brain Freya shouldn't even be able to move. "She should be like a flower in a pot",were his words,he looked her straight in the eye and asked if that was her standing right in front of him on her father's lap!?

After an affirmative answer,the docent said there was nothing more to look for from this child and there was no way to predict her future!

But alas,in spite of all the negative advice and opinions from big names in neurology and physical medicine,Freya began to progress with everything,until she was 4 years old!

After another visit to take measurements and make orthoses,to help her walking process,the doc tore the tendon in his right injured leg trying to relax by stretching the leg so he could take the measure,from there we were back to square one 3 and a half years downwind....

All the physical progress she had made (she could stand straight and take a few steps ) was in the past.After several months of consultations with orthopedists and ongoing rehab in the meantime we came to the conclusion,that she would no longer be able to stand on her foot unless she had a surgical intervention,namely one to lengthen the tendon...Thank goodness we came across a great specialist there who did an extremely precise and with the result we expected.6 months after the surgery she started to step on her foot again and to try to walk.Thanks to this orthopedic doctor and her struggle she is now walking with the help of someone else.

We are going to have consultations for a possible reconstructive surgery and for the right hand,which is actually the most affected by the disability,but at the moment the concentration is mainly to stand up and walk completely independently.She still lacks active speech despite continuous visits to the speech therapist,she only says Mama,Tati Baba and the name of a kitten we recently had,namely Mimi.

Freya is a constantly smiling girl,who can melt the most rigid and unyielding person with just one look.

We have managed completely on our own financially throughout her nearly 6 years,but all her treatments require too much money,which is already beyond our means,and it is now that she must not stop.

She attends a rehabilitation center for children in Targovishte.Every evening she has a rehabilitation in V.Tarnovo.She also goes to a speech therapist in Gorna Oryahovitsa.

We hope to fulfill the dream of all of us Freya to walk independently and to speak 🙏