cystinosis

Organizing a charity campaign to raise funds for the treatment of cystinosis through the PavelAndreev.ORG platform

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Articles - Crowdfunding campaign to raise awareness about Cystinosis in children
23rd November 2023

Crowdfunding campaign to raise awareness about Cystinosis in children

Have you heard about the disease Cystinosis? Did you know that it occurs mainly in children? The disease Cystinosis is hereditary, autosomal recessive...

Articles - Need financial help in child's fight against cystinosis - donation campaign can help
23rd November 2023
Need financial help in child's fight against cystinosis - donation campaign can help

Cystinosis is a recessive autosomal disease that affects children in infancy. This means that both parents carry the cystinosis mutation. Often times, the parents do not show any symptoms of cystinosis. In such couples, the likelihood of either child having cystinosis is 1 in 4. Cystinosis is also called an "orphan" disease because it affects fewer than 200,000 people. It can be said to be a rare disease because of the small population and for t...