Articles - What is Ewing's Sarcoma and what are the treatment and support options?
13th June 2024

What is Ewing's Sarcoma and what are the treatment and support options?

Ewing's sarcoma is a rare but extremely aggressive cancer. It mainly affects children and young adults. It develops rapidly and metastasizes early. Thousands of new cases are registered worldwide every year, which brings a significant social and emotional burden to the affected families.

In countries such as the USA, Germany, the UK and Turkey, for example, treatment of Ewing's sarcoma is more standardised and often involves access to multidisciplinary teams and advanced treatment approaches. This leads to higher chances of successfully treating the disease. These countries also offer various support programs for patients and their families.

In other countries, however, access to specialized treatment is significantly limited due to lack of necessary equipment and trained professionals. In such cases, patients often have to apply adequate treatment abroad, for which the costs increase significantly.

Ewing's sarcoma: the nature of the disease

Ewing's sarcoma is a rare type of bone cancer that most commonly occurs in children and young adults. The occurrence of this disease is closely linked to genetic factors and in particular to specific genetic abnormalities. Most commonly, this disease is associated with a translocation between chromosomes 11 and 22. This genetic alteration leads to the formation of a fusion protein that plays a key role in the development of cancer. This protein stimulates cells to divide and grow out of control, leading to the formation of tumours.

This type of cancer can metastasize or spread cancer cells to vital organs of the body through the blood or lymphatic system. This can complicate the treatment process and worsen the prognosis for the patient.

Symptoms of Ewing's Sarcoma

Symptoms of the disease can be non-specific and are often confused with other diseases such as arthritis or sports injuries, and this can delay a correct diagnosis. Typical symptoms include:

  • bone and soft tissuepain that does not subside and intensifies in the evening

  • swelling or bulging of a specific part of the body

  • easy bruising

  • difficulty with mobility

  • inflammation and increased sensitivity

In some cases, especially when the disease affects the spine, patients may experience weakness in the limbs or even paralysis.

Diagnosing Ewing's sarcoma

Diagnosis requires a series of tests that help doctors identify the characteristics of the tumor and its spread throughout the body.

  • The characteristics of the tumor and the tumor's characteristics

  • CT scans

  • magnetic resonance imaging (MRI)

  • positron emission tomography (PET scanner)

  • biopsy

  • complete blood tests

  • bone marrow analysis

  • molecular genetic tests

These tests are important not only for diagnosis but also for assessing the stage of the disease and planning the most appropriate treatment approach. Unfortunately, the costs of these tests are very high.

Ewing's sarcoma: Treatment

Treatment for Ewing's sarcoma is usually complex and involves a combination of surgery to remove the tumor, chemotherapy to destroy the cancer cells, and radiotherapy to control the tumor and any metastases.

In recent years there has also been work to develop more targeted therapies to attack specific genetic abnormalities found in Ewing's Sarcoma tumours. Advances in genetic research and new technologies in oncology offer hope for more effective treatments with fewer side effects in the future.

The PavelAndreev.ORG online platform and its role

The PavelAndreev.ORG platform is an innovative online space that plays a key role in supporting initiatives and projects with a public purpose.

The PavelAndreev.ORG platform offers an extremely convenient and easy-to-use environment for registering and launching campaigns with different social and cultural objectives. Users can easily browse the available campaigns and get involved as donors or start their own campaign. The platform works as a mediator between ideas and the people who want to support them.

Don't waste any more time, start a campaign now on PavelAndreev.ORG

How to start a campaign to raise funds for the treatment of Ewing's Sarcoma

  1. Start a campaign quickly and easily by following the set steps.

  2. Use the campaign description to explain what your goal is and why it is important to raise funds to cure a patient with Ewing's Sarcoma. Provide information about the patient, their history and their current condition.

  3. Include documentation and photos: Attach any documentation that supports your cause such as medical reports, photos of the patient and testimonials from doctors. This will help convince people to donate to your campaign.

  4. Share your campaign on social media: Use social media sites like Facebook, Instagram, LinkedIn, X, Tik Tok and YouTube to share the link to your campaign. Invite your friends, family and acquaintances to share it as well to reach more people.

  5. Update regularly: keep your donors informed about the progress of your campaign and the funds raised. Post regular updates on the patient's health condition and how the funds will be used for their treatment.

  6. Show respect and appreciation to donors: Be grateful to everyone who has donated to your cause and let them know what their support means. Be transparent about how funds raised will be used and provide reports and documents to confirm your accountability.

Why launch a campaign to support NGOs working with people affected by Ewing's Sarcoma

Launching a campaign to support non-governmental organizations (NGOs) working with people affected by Ewing's Sarcoma, including funds to help children abroad, is essential for a number of reasons.

Firstly, such organisations play a key role in providing medical care and support for affected individuals and their families. Ewing's sarcoma is a serious cancer that requires specialist treatment and care. Non-profit organizations raise funds, organize events and provide resources that help patients gain access to needed treatment and care.

In addition to medical care, these organizations often provide psychological support for both patients and their families. Diseases such as Ewing's Sarcoma have a strong emotional impact on patients and their loved ones, so support in this aspect is of utmost importance.

Campaigns to support such NGOs help raise awareness of the disease. By providing information and organising events and fundraising campaigns, they excite the public and motivate people to get involved in the fight against this serious disease, which mainly affects young people and children.

On the other hand, funds to help children abroad with Ewing's sarcoma play a key role for children who cannot get the treatment they need in their home countries. These foundations usually provide financial support for treatment in specialised medical centres in different countries around the world. Their work is essential to saving lives and improving the quality of life of children battling this serious disease.

How can we support Ewing's Sarcoma campaigns by making a donation?

Supporting Ewing's Sarcoma campaigns through donations is an easy and effective way to help those affected and their families. Visit the online donation platform PavelAndreev.ORG, browse the active campaigns and choose the one you wish to support. Then select the amount you wish to donate and complete the payment process using one of the following methods

  • Credit and debit card

  • PayPal

  • ApplePay and GooglePay

  • Revolut

  • Bank transfer

Your donation will be made directly to the campaign and will help reach its goal.

Good examples of successful campaigns

The PavelAndreev.ORG donation platform hosts many successful campaigns to raise funds for treatment, including for patients with Ewing's Sarcoma. Some of them include stories of patients who have faced the disease and who need financial help to access the necessary treatment. These campaigns not only raise funds, but also provide information about the disease and inspire others to join the fight against it.

Gergana 's campaign against bone cancer is a good example of a successful campaign. She is a young girl who fought Ewing's Sarcoma. She needed long treatment and rehabilitation, but she succeeded. Her relatives and friends started a campaign on PavelAndreev.ORG to raise funds for her treatment. With the help of social networks and people's broad support, the campaign quickly attracted attention and raised the necessary funds for treatment. This successful campaign not only helped fund medical expenses, but also inspired many to join the fight against this serious disease.

Ewing'ssarcoma is a disease that requires tremendous resources for effective treatment and support. Information about symptoms and treatment options is essential to improve the prognosis for patients. Your support is invaluable to the lives of those suffering from this rare and severe disease. Together we can create a brighter future for them. For this, start a campaign or donate today at PavelAndreev.ORG.

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