The medical history of my son Ahmad Shahbazov

My name is Patsun, my son Ahmad is 10 years old. He was born on June 5, 2015 and is studying in the second grade. Ahmad is an active, smart and kind boy who loves his little sister Madina very much. But since his early childhood, he has been battling a severe blood disorder - a severe form of beta-0 thalassemia.

In 2016, Ahmad was diagnosed with an inguinal hernia and we were preparing for surgery. But during checkups, doctors discovered serious problems with his hemoglobin. In 2017, we started treatment in hospitals in Ufa and Moscow. My son underwent numerous blood transfusions and was prescribed drugs to stimulate hemoglobin production. Unfortunately, the treatment did not bring the desired effect, and the disease led to severe consequences: deformations of the chest and skull, enlargement of the liver and spleen.

Since 2019, we have been using individualized blood transfusions and medications to eliminate excess iron. However, as of September 2024, the necessary medications were no longer provided despite court orders. Since January 2025, Ahmad has been receiving the drug Reblosil, but the expected effect is not yet there.

My son's life is threatened on a daily basis. We desperately seek help and hope because without specialized treatment, his condition continues to deteriorate.

Finally, we have been given a chance in Istanbul, Biruni Clinic is ready to perform a bone marrow transplant that could save Ahmad's life. We are fully prepared for the procedure, but the cost of treatment is incredibly high for our family. I work alone, my wife takes care of the children, and all of our income goes towards housing and life-saving medication for our son.

We are sincerely asking for help: please help save my son Ahmad! Every support is a chance to give him life and hope for the future.