Sofi’s spinal cord may burst at any moment and cripple her forever!

Sofi’s  spinal cord may burst at any moment and cripple her forever!

There was no indication that our second child would be born with a dangerous diagnosis.The pregnancy went smoothly, all test results  were normal.  And yet there was no indication of Spina bifida.
Right after giving birth, she was diagnosed with spina bifida.  The tears of joy and happiness transformed into tears of despair. The suffering is indescribable from a single thought  that your child is going to be cripple and suffer whole her life, be cut off from all the happiness that all children enjoy in the daily life…
We did everything in our power to provide our daughter with the necessary medical care. Unfortunately, local doctors did not give Sofia any chance, and the therapies and rehabilitation undertaken did not bring good enough results...

Currently, day after day I notice how she is starting to cripple, because of her left leg is getting shorter and shorter and her condition is deteriorating dramatically day by day and her spinal deformities are getting worse. Only performing a specialized operation as soon as possible can save her! Otherwise, the spinal cord will be damaged or completely severed! And then the whole body will stop functioning properly. Sofia has her whole life ahead of her!  She needs to full fill her big dreams- become a designer and create beautiful dress. Like a loving and caring parents, we can't let that spina bifida makes decisions regarding her present and the future.

Unfortunately, the procedure can only be carried out in a foreign clinic. However, the costs of all the medical procedures are huge. We are unable to cover them ourselves. I’m in despair from the thought  that money could decide does  Sofia live full of life or not?!  Meanwhile, I tremble with fear from the thought of what may happen without this operation...
Since Sofia's birth, we have been fighting for her health. Till now,  we have tried to fight this battle on our own, but  no longer we can carry it out alone and  have no choice but to ask for help! 

Sofia has untreated spina bifida. She is 9 years old but still has to wear diapers at night and during day time she needs to wear special pads, because of urine inconsistency. We had to organize home schooling for her in spite of  her being against it.  However, this February we had to take her to school because she couldn’t stand any more being at home all the time. She is very friendly and loves to make friends. While attending to school she carries with her couple of changing clothes. Her left foot shoe size is two size smaller than the right one and all the time we had to adjust her shoes. These are visible issues of spina bifida.  Sofi has entered in active growth stage and according to  doctors  her spinal cord is stretching  accordingly. In case of damaging spinal cord consequence will be irreversible, because her spinal cord could rupture at any time and cripple her forever.
She is very talented in music, plays on piano  and has a beautiful voice.