Hello, we are a family with 2 children, Lucia is 3 years and 10 months old and a little boy is 8 months old, Lucia was born at 26 weeks weighing 900 grams, she was in the hospital for 3 months and came back as a normal child everything went well and she developed well until 9 months, after 9 months she started having seizures and from there the ordeal began and since then we have been fighting with the disease.I went to the hospital there after a more thorough checkup she was diagnosed with West Syndrome (epilepsy) spastic tetraparesis.

She started a treatment to stop the seizures but along the way there were several complications followed by many hospitalizations, at the moment the girl is undergoing treatment to avoid seizures and she is doing physiotherapy therapies.

The little girl is 3 years and 9 months old, she doesn't sit on her butt, she doesn't hold her head, she eats only special milk and pasta, she doesn't speak. Our doctors recommended us to go with the little girl to Turkey for more investigations.

We have sent many hospital discharges and test results from the little girl and we found a treatment for her illness in Turkey only it is very expensive and we can't afford to go ,the little girl would like to play with her little brother but she can't move.