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Ταμείο θεραπείας παιδιών στο εξωτερικό
Бъди ангел-спасител за малкия Теди
Be a rescuing angel for little Teddy
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БЪДИ ДО ТЕДИ! ❤️ BE BY TEDDY! ❤️
Здравейте скъпи приятели. От известно време не съм давала информация за Теди ,но тези месеци беше тежко и натоварено за нас. На 4 Август посетихме Амстердам ,това посещение го чаках цели пет години. В Амстердам се намира центъра за Левкодистрофии и единствената професорка в Европа която се занимава на Теди с диагнозата... Както казах ,чаках я тази среща много години с голяма НАДЕЖДА И ВЯРА.
Прегледа мина ,но отново ми припомниха колко е рядка и тежка диагнозата на Теди. Аз отидох с НАДЕЖДАНА, да бъде включен в тяхното експериментално лечение, но моето дете не отговаря на техните изисквания. Толкова много се моля един ден да бъде включен в програмата дори и за експериментално лечение,защото всяко дете заслужава шанса за по - добър живот! Моля продължавайте да подкрепяте Теди, защото той продължава ежедневно с рехабилитацията която е много важна за неговото състояние. Той се бори и труди ежедневно.
Благодаря от сърце!
Hello dear friends. I haven't given information about Teddy for a while , but these months have been hard and busy for us. On the 4th of August we visited Amsterdam , I have been waiting for this visit for five whole years. In Amsterdam there is a Leukodystrophy center and the only professor in Europe who is dealing with Teddy's diagnosis... As I said , I have been waiting for this meeting for many years with great HOPE AND FAITH.
The examination passed , but I was reminded again how rare and severe Teddy's diagnosis is. I went with HOPE to be included in their experimental treatment but my child did not meet their requirements. I pray so hard that one day he will be included in the program even for experimental treatment,because every child deserves a chance at a better life! Please continue to support Teddy because he continues daily with rehabilitation which is very important for his condition. He is fighting and working hard everyday.
Thank you from the bottom of my heart!
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