Hello, my name is Venislava Poshtadjieva and I am the mother of Simeon Stamboliiski! 💙

Simo was born at 41 with a normal weight of 3,630kg, 51cm, developing normally. After he made 4 months, we noticed that he didn't lift and hold his head like other kids. He started wandering in space, neither reflecting us nor the toys we showed him. This all started after the vaccines were given in the 4th month.I felt and still feel terribly lost that we vaccinated him. The GP and friends reassured me that the boys were lazier and that he would start rearing his head.

When he turned 6 months old the big doctor visits started. The GP said his condition(that he couldn't lift his head and wasn't following us)was not normal and sent us to a neurologist. We went and he started telling us how our child had cerebral palsy and had a mongoloid appearance. From there he sent us for a transfontal ultrasound. The doctor there told us that Simo had hydrocephalus and recommended that we go to Tokuda to see a neurosurgeon. He wanted us to do another transfontanal ultrasound because the one at the medical center gave us nothing, just a flip sheet...

The neurosurgeon denied that he had hydrocephalus, just dilated ventricles. To this day, we go to TFE and the ventricular dilation is decreasing. We got an MRI which proves there is no hyphocephaly. We have asked the opinion of 3 specialists in the field and they have denied that there is hydrocephalus.

We went to the SBRDCP "St. Sophia", at 1 Resurrection Blvd. They didn't want to admit us right away for rehabilitation because they wanted us to have tests by a cardiologist, DNA analysis and examination by an eye doctor.

It delayed us a lot that we had to have a DNA analysis, because we could only get in after 1 month. Quite by chance, our friends told us that they could put us in touch with the docent of the hospital. We contacted him, he accepted us and said we could start rehab in 2 days. He had told us that he would walk...

From 21.02.2022 to 17.03.2023 we went to rehabilitation regularly, he started to hold the head more, but the work of the specialists is not 100% unfortunately... With Simo only head retention was worked on, not the whole body motor. Our child can't walk, he can't sit on his own, he has no strength and support in his arms, he needs and wants to be carried by himself because he is growing, starting to understand and doesn't want to just lie down. He really likes it when we put him to sit and show him toys. His little hands are very weak, he has no strength in them and can't always reach out to touch what he wants, he just stands and smiles. The only actions he can perform on his own are lying down, turning from back to tummy, tummy to back and kicking.

We have had a check up with a cardiologist which revealed that he has a large MPD with a large LD SHUNT and we are waiting until he is 3 years old to decide if he will have heart surgery.

We went into pediatrics for genetic testing when he was 9 months old. It came out that he had a defect on chromosome 7 and chromosome 10. They didn't explain to me what the defect on these chromosomes meant, they only said to work on the child where it was found that there was a problem.

We went to Genika to do genetic tests again. There it came out that he had a defective chromosome 5. They said he had a rare syndrome, which they didn't tell me anything about, they didn't know what it meant themselves... I dug around on the internet to see what it meant. And from what I've read, he has none of the features of the defective 5th chromosome. We went to a geneticist who never said anything, and the only thing he mentioned was that it was strange in a normal pregnancy for a child with great postpartum performance to have this condition...

I would like to add one more thing in the aftermath of the vaccines at the end of his 4 months, my child has a severe allergy to protein after being fed formula in the delivery room. So I tend to think there is some reaction in his musculature and his developmental delay.

We want to start rehab at a rehab center, which said it is unacceptable to work with just one area of his body when he needs full body work because his legs can atrophy that way. They are working with a Turkish hospital they recommended to us and I have spent a quote from them. We want to go there for tests so he can be diagnosed because no one here takes us seriously.

Since we are not able to give this amount for the tests, so we appeal to you kind hearted people.

Let's help our sunny boy because he still has a chance!

Thank you!