Mi nombre es Mariela, soy la mamá de Miguelito quien nació en 2012 con Síndrome de Apert ( sindactilia en manos y pies ) Craneosinostosis, Autismo y epilepsia. Ya le han realizado varias cirugías.
Sin embargo aún falta mucho y por eso Pido ayuda para poder continuar con su tratamiento con el ortopeda por sus piernitas, cirujano plastico para sus manos, y el cirujano maxilofacial pues aparte de su paladar hendido su dentadura tiene mal desarrollo y le causa mucho dolor.
Miguel usa pañales desechables pues no controla esfínteres debido a su malformación del cerebro y cerebelo. Su comida es especial y todo esto conlleva muchos gastos.
Lastimosamente en la red pública no hay especialistas para éste tipo de tratamiento en niños con estos casos severos, por lo cual no todo puede ser atendido ahí.
Yo tengo 2 hijos más soy madre soltera y mis ingresos no son suficientes para cubrir todas las necesidades, en éste momento mi situación económica es muy difiícil y me impide costear los gastos de su tratamiento y todos las necesidades que su condición precisa. Necesitamos fondos para comida y gastos diarios, para facturas.
Pido de todo corazón su valiosa ayuda para poder seguir adelante. De antemano muchas gracias 🙏💙💜
My name is Mariela, I am the mother of Miguelito who was born in 2012 with Apert Syndrome (syndactyly in hands and feet), craniosynostosis, autism and epilepsy. He has already undergone several surgeries.
However, there is still a long way to go and that is why I am asking for help to continue with his treatment with the orthopedist for his legs, plastic surgeon for his hands, and the maxillofacial surgeon because apart from his cleft palate, his teeth are poorly developed and cause him a lot of pain.
Miguel wears disposable diapers because he has no sphincter control due to his brain and cerebellum malformation. His food is special and all this entails a lot of expenses.
Unfortunately in the public network there are no specialists for this type of treatment for children with these severe cases, so not everything can be treated there.
I have 2 more children, I am a single mother and my income is not enough to cover all the needs, at this time my economic situation is very difficult and prevents me from paying the costs of their treatment and all the needs that their condition requires. We need funds for food and daily expenses, for bills.
I ask from the bottom of my heart for your valuable help to be able to move forward. Thank you very much in advance 🙏💙💜
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